Posts
- Spring Update: Educating, Advocating, and Building Momentum
- 2026 Congressional Advocacy Day: Recap and Successes
- Angelman Community Delivers Big Wins in FY26 Fund Bill
- Call on Congress to Enact the FY2026 Defense Appropriations Act
- Voice of the Patient Report Submitted: A Powerful Milestone
- September 2025 Advocacy Update
- 2025 Medicaid Changes Ahead: What to Know
- EL-PFDD Meeting Recap and Next Steps
- Progress for Angelman Syndrome Relies on a Strong NIH and FDA
- 2025 Advocacy Day: Recap, Successes, and Status of Our Priorities
- 2025 AS Congressional Advocacy Day: Legislative Priorities
- Urgent Message regarding Externally-Led PFDD Meeting
- Update on Advocacy Efforts and Ways to Get Involved in 2025
- Advocates Achieve Initial Wins Resulting from Inaugural Congress
- Hope in Action: Angelman Syndrome PFDD Meeting January 2025
- Congressional Advocacy Update
- Inaugural Angelman Syndrome Congressional Advocacy Day Round-Up