The Angelman Syndrome Hope in Action Center
Every family affected by Angelman syndrome deserves a seat at the table — in Washington DC, in state capitols, and at the FDA. Angelman Advocates gives you the tools, resources, and community to make your voice impossible to ignore.
A multi-tiered approach to advocacy for Angelman syndrome.
The Angelman Syndrome Foundation (ASF) and the Foundation for Angelman Syndrome Therapeutics (FAST) are united and committed to making a significant impact in the Angelman syndrome community through grassroots advocacy.
Federal Agencies
Directly engage federal agencies through public meetings.
Congress
Increase the federal understanding and focus on Angelman syndrome
Lead appropriations requests for federal funding of Angelman syndrome research and federal agency focus on Angelman syndrome.
Support, lead, or monitor legislation related to
- Ensuring access to necessary health care services and supports.
- Improving rare disease drug development.
- Improving services and support for caregivers.
- Improving disability and accessibility policy.
- Ensuring early diagnosis.
- Create relationships with members of Congress and turn them into champions for AS.
State
Advocate for improving state programs related to services, long-term care, therapies, caregiver expenses, disability policy, and waiver programs.
Help spread awareness by obtaining proclamations for Angelman syndrome awareness day.
Support state legislation aimed at newborn screening
A Message from Ryan Fischer & Amanda Moore
The Foundation for Angelman Syndrome Therapeutics (opens in a new window) (FAST) and the Angelman Syndrome Foundation (opens in a new window) (ASF) formed a strategic partnership to drive a coordinated, multi-tiered advocacy strategy to improve the lives of those affected by Angelman syndrome.
Both organizations understand the need to ensure key decision makers understand Angelman syndrome to influence and inform policy, legislation, and funding related to AS. We cannot accomplish our goals without YOU – caregivers, family, friends, research, and clinical partners. Please consider joining the AS Advocacy movement: Learn More
Sincerely,
Ryan Fischer (COO of FAST) & Amanda Moore (CEO of ASF)
Latest Hope in Action News
Stay up to date with the latest Hope In Action news, milestones, and advocacy progress. Explore important updates from the movement and see how families, partners, and leaders are driving change for the Angelman syndrome community.
Spring Update: Educating, Advocating, and Building Momentum
2026 Congressional Advocacy Day: Recap and Successes
Angelman Community Delivers Big Wins in FY26 Fund Bill
Upcoming Events
See what’s coming up and find ways to connect, learn, and take action. Explore upcoming events across the Hope In Action movement.
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Sign up to hear about advocacy efforts, important updates, and meaningful actions you can take to support the Angelman syndrome community. Join our community to stay informed, get involved, and be part of the movement driving change.