About Us

The Angelman Syndrome Foundation (ASF) and the Foundation for Angelman Syndrome Therapeutics (FAST) are united and committed to making a significant impact in the Angelman syndrome community through grassroots advocacy. This commitment is what led us to jointly launch Hope in Action: Progress through advocacy.   "Hope in Action" is a call to action - to recruit a grassroots army of Angelman syndrome families and friends to foster relationships with members of state, local, and federal governments to advocate for policies that have the potential to positively impact the lives of our families. 

Together, ASF and FAST combine their strengths and expertise, creating a powerful force that drives progress, offers support, and seeks transformative treatments for Angelman syndrome. Our collaborative efforts epitomize our shared dedication to making a lasting difference in the lives of those we serve.

Our Angelman Syndrome Advocacy Priorities:

• Increase the federal focus and research investment in Angelman syndrome  
• Support legislation to improve the quality of life for people with AS and their families  
• Ensure that regulatory & public policies reflect the priorities of the AS community  
• Advocate for FDA flexibility and appropriate speed in review of potential therapies 
• Ensuring family experiences and preferences are integrated into therapy development and delivery, from study design through health plan access; and  
• Support legislation and policy at the state and federal level aimed at supporting caregivers