CURRENT ACTION ALERTS

National

FY27 Angelman syndrome advocacy day Asks

On March 4, 2026, 140 Angelman syndrome advocates went to Capitol Hill as a united front to urge elected officials to support our FY27 appropriations requests, keep us on the PRMRP list of eligible conditions for funding from the DoD, and urge the FDA to consider our patient experience data submitted November 2025 when reviewing new treathments.

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