2026 Congressional Advocacy Day

 Parents of individuals living with Angelman syndrome, as well as grandparents, aunts, uncles, siblings, and friends.  We also welcome clinicians and researchers - Anyone can be a good advocate!  

FOR INDUSTRY PARTNERS, if you're interested in attending, please reach out to info@angelmanadvocates.org for your registration link. 

Advocacy training is from 3:00pm-8:00pm EST on Tuesday at the hotel and meetings with your elected officials will be all day on Wednesday between 8:00am-5:00pm EST

Registration for the event is free.  Dinner on Tuesday evening and a light breakfast on Wednesday morning will be provided. 

All other expenses which can include but are not limited to Ubers, flights, accommodations, and additional meals are your responsibility. 

Congressional Advocacy Day on Capitol Hill can be a busy and potentially overwhelming experience with a lot of walking, meetings, and interactions in a fast-paced environment – for everyone. So deciding on whether to bring your loved one living with Angelman syndrome and/or their sibling(s), is a personal decision for each family.

Siblings and individuals living with AS joining the meetings can have a huge impact. Their presence can help legislators and staff truly connect with the reason we’re advocating—it makes the mission very real.

If you think that your child can tolerate these kinds of settings and you feel comfortable managing their needs during the day while focusing on the meetings, having them there can be incredibly impactful. 

That said, it’s equally okay to decide not to bring them. Your ability to focus on the advocacy conversations and share your story might be easier without the additional demands of caregiving in a new environment. Families are welcome to bring a dedicated caregiver, having them join you at training and on Capitol Hill as an added support system for your family.

 If you are considering this as a family, check out the Caregiver Information Guide for general information before registering.